My head looks weird

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Do I show a silly selphie or do I show the actual picture of my wound? The wound in my opinion doesn’t look so bad, but I don’t get the heebie geebies over medical stuff. I’m not sure of the rest of my audience, the best I can think to give for an idea of what my head looks like, is to show the picture of the baseball my husband took to show how the lacing looks like what they did to the back of my head.


The red laces correspond to all the metal staples they plugged into my head, about 37 all together, if you ask me that seems a little lazy, what ever happened to the good old days of stitching? 

Here is a silly selphie for today.

Happy 26th Wedding Anniversary to us

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Happy Anniversary to us, twenty six years ago, today we pledged our vows to each other. The vows for better, for worse, in sickness and in health have stood the test of time so far, here is to twenty six more years.

We did our celebrating Monday night with a lovely meal at Menton in Boston near our hotel where we stayed before my surgery. Today we are relaxing, watching t.v and reveling in the good fortune that my doctors pay attention to my husband when he wants more tests to get to the bottom of whatever ails me. If we hadn’t gotten the second MRI, we wouldn’t have known about the second tumor and it could have grown into my brain and the surgery would have been much worse. Thanks to my husband’s vigilance, the tumor was caught early and I’m home the next day on our wedding anniversary. Perfect.

Searching for the super moon 

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We arrived in Boston at 2:00, I was already looking for the super moon, the sky was blue, but in the distance I could see some clouds heading out way. 


Now that it gets dark at 5:00, boo, we left the hotel to capture the super moon and we couldn’t find it at first. We walked to our restaurant with our heads pointed up at the sky, scanning the night for our super moon, but it wasn’t there, so I took pictures of Boston by night.



We found the super moon at last, the cloud cover broke and across from our hotel, there it was hanging in the sky, beautiful and large.

Arrival : a movie review

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I love watching movies without any expectations, you just go in for the journey and come out on the other side of the story. My husband and I both enjoyed the movie very much, it wasn’t your average sci-fi movie, like Independence Day full of action, terror and potential annihilation of mankind, it was more of a cerebral sci-fi movie, still full of potential threat, but the question was always at whose hand, ours or theirs? 

The questions raised by the story kept the movie interesting throughout, our limited faculties in divining responses from something non human lay at the crux of the matter. Amy Adams was wonderful as the linguist Doctor Louise Brooks, she made language so powerful and transformative. The theories revolving around how language effects your way of thinking, how learning new languages can rewire neural pathways and open your mind kept me engaged, but I was still fearful for our survival in the movie because there was a lot of military involved and language isn’t too sexy in that milieu.

Time was another concept introduced into the canvas, I’ve seen how other sci-fi movies have treated time as a construct and this movie did an interesting job folding the idea of time being non linear for the aliens and linked to their language. I can’t explain it very well, but it made sense during the movie.

The movie wasn’t what we had expected, but we were very happy to have seen it.

Happy Veteran’s Day!

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Today we take the time to honor our Veterans, as it should be, considering their selfless sacrifice for our freedoms. I admire the commitment, the discipline and the mindset that distinguishes our military families from the rest of us. However, it would be lovely if we extended our remembrance to the everyday, writing our elected representatives to do more for our Veterans in their réintroduction back in our society. Today is a wonderful day to think about ways we can help beyond the parades and the store sales.

Good news from my neurosurgeon

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I had a great meeting with my neurosurgeon, basically my brains aren’t going to get scrambled, the tumor is right above the brain’s lining, he isn’t even going to cut into the lining so though the tumor is aggressive, it is concentrated in the bone and the outer barrier area. This is going to be a relatively quick operation, about an hour, I hope that while Doctor Nahed is in there, he can vacuum a little bit, get rid of the cobwebs and dust off the corners, do some housekeeping since he’s in there anyway. He also explained that he was reserving the decision to do the shunt until after I’m under anesthesia and he can do a lumbar puncture to check the cerebral fluid pressure, if the puncture test shows pressure than he’ll go ahead with the shunt which will keep me in the hospital for just another day. 

The meeting made us feel confident about the procedure and afterwards we talked about the real exciting part of my treatment plan, the immunotherapy, my neurosurgeon got very passionate about the huge changes in positive outcomes since immunotherapy was discovered. We left feeling great and optimistic about the next few week. Onwards and forward.

Gearing up for more tests

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We are back in Boston, I posted the picture of my mums to cheer my post up a bit, this afternoon, I’m having my last MRI and head CAT scan before we meet with the neurosurgeon tomorrow. So far today, my husband and I had a nice sushi lunch and after the two tests, we are going to have artisanal pizza from right here across the street from the hotel, I’m really looking forward to it, I love great pizza.

Tomorrow I’ll learn exactly what the neurosurgeon plans to do to the inside of my head, how long the surgery will take and how long I will be languishing in the hospital for, a few days or a week. I’m not nervous, I’m looking forward to getting relief from the constant headache, so that is what’s keeping me in good spirits, there is a plan for no more pain.